Parents conceive baby to rescue seriously ill older child. Doctors call the event “groundbreaking”, but ethics experts caution against decreasing the value of life
For any parent it would be a terrible dilemma. Their child is desperately ill with a rare disease and their only hope is to create a compatible donor by having another baby specifically designed to save the first child. Is this a valid reason to bring a child into the world?
They are called ‘spare parts babies’ or ‘saviour siblings’ and Denmark now has its first.
Aarhus University Hospital recently announced that, after trying for five years, a couple was successful in conceiving a baby whose stem cells could be used to rescue the life of their seriously ill older child. The baby, a boy, is now nine months old. The news has once again sparked the debate surrounding the ethics of designing a child whose principal role is to supply the umbilical cord blood and stem cells needed to save the life of a sibling.
“This is groundbreaking,” Dr Jakob Ingerslev of Aarhus University Hospital’s fertility clinic, where the new child was born, told Jyllands-Posten newspaper. “It is the first time in Denmark that a child has been born that was conceived to supply the umbilical cord blood that could rescue a sibling.”
Ingerslev will not identify the family, but said that they had also conceived a child in 2009 whose blood and tissue matched their older son’s, but decided to abort the pregnancy when it was discovered that the foetus had Down’s syndrome.
Ingerslev said that the decision to end the earlier pregnancy proved that the parents were not just looking for a ‘spare parts baby’, but indeed wanted to have another healthy child.
“They aren’t just looking for parts,” he said. “Otherwise, they would have kept the Down’s syndrome child.” Not everyone considers Denmark’s first saviour sibling to be good news.
Thomas Ploug, a professor at Aalborg University Copenhagen in Ballerup and a member of the Ethics Council, says he believes that it is important that children are brought into the world for their own sake.
“I understand the terrible situation of the parents and admire their efforts to help their child,” said Ploug. “But I am worried that this is another case that seems to question the value of individual human life and dignity. This does not rule out the legitimacy of creating a child for the sake of a sibling, but it is important that the parents are aware of the value of each child for its own sake.”
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