Kaden Hartman, the 13-year-old denied life-saving treatment because he used CBD oil, is a fighter. And so is his mother.
Kaden Hartman of Virginia Beach is 13-years-old and lives with Niemann-Pick disease, a condition known colloquially as Child’s Alzheimer’s. There are approximately 500 to 100 cases of diagnosed NPD today, making it extremely rare. Children with Niemann-Pick disease experience rapid physical and mental deterioration. Eventually, they’re faced with seizures and problems with mobility, eating, and communication. According to the National Niemann-Pick Disease Foundation, most children suffering from Child’s Alzheimer’s don’t live to age 20. Kathy Hartman, the mother of this 13-year-old denied life-saving treatment because he used CBD oil, reached out to High Times to explain what happened.
Kaden’s FDA-Approved Treatment
“When there’s nothing else out there to save his life, the FDA will approve an experimental medicine, and he’s been on it for almost three years,” Mrs. Hartman explains.
The drug the FDA approved for Kaden is called Cyclodextrin and has been effectively treating Kaden’s Niemann-Pick disease.
Doctors predicted that Kaden wouldn’t live to age 13, but he’ll be 14 in April.
“It’s definitely working,” says Mrs. Hartman.
In addition to the experimental Cyclodextrin, Kaden has been taking CBD oil since he started experiencing seizures, a common consequence of Niemann-Pick disease.
“It slows down seizures by, I think, 60 percent,” Mrs. Hartman says of CBD after doing research on the non-psychoactive compound of cannabis on her own.
Watching her son experience 10 to 20 seizures daily, Mrs. Hartman decided to give CBD a shot, under the supervision of Kaden’s primary neurologist.
“It seems to be working great,” Mrs. Hartman told Kaden’s neurologist who closely monitored his CBD use.
With CBD, Kaden avoided the negative side-effects associated with anti-seizure medication.
According to Kaden’s mother, the only potential results of CBD use are slight drowsiness and a better appetite.
Going off CBD, however, has had serious consequences.
After Mrs. Hartman received a letter from the Virginia Commonwealth University Medical Center (VCU), the hospital treating Kaden, stating that Kaden will be taken off the study if he uses CBD, she stopped giving him the herbal supplements.
Off CBD, Kaden experiences many seizures. He has since fractured his skull, concussed himself, and developed two blood clots in his brain.
Not only was this 13-year-old denied life-saving treatment because he used CBD oil, but CBD oil itself was a lifesaving treatment for seizures.